Neuro Surveys Listing | CNSF
Your opinion and experience makes a difference.
Please consider taking some time to provide your input on any of the following surveys that would apply to you and your profession.
These surveys are not created or endorsed by the CNSF. They are posted on behalf of our members and related specialties in an attempt to assist in research.
Are you a Neurologist or a Neurology Resident that provides medical care services to older adults with combined hearing and vision impairments? How has COVID-19 affected your services to older clientele with sensory loss?
We need to hear *your* voice! Tell us about your service delivery & training needs to provide optimal care to your older clientele during COVID-19. Be an advocate 4 change, complete our survey https://bit.ly/3f0zjcd. First 100 respondents will receive a $10 Tim Hortons gift card, as a token of appreciation. Survey Closes September 30, 2021.
Dual sensory loss/DSL is a combination of hearing and vision loss in the same individual and can range from low vision and hard-of-hearing to total deafness and blindness. Estimates from the analysis of the Canadian Longitudinal Study on Aging (CLSA) 2016 data indicate that 1.1 million older Canadians experience some form of DSL.
We are a team of Canadian researchers who wanted to understand the challenges faced by healthcare and other allied professionals while providing services to older adults living with DSL during COVID-19 in Canada. The project aims to develop an understanding of the training and service delivery needs of healthcare and other allied professionals to provide optimal care to older adults with DSL. The study has obtained ethical approval from the Research Ethics Committee, University of Montreal.
The survey is online, bilingual, contains mostly multiple-choice questions, can be saved, and completed later, and should take approximately 15 minutes to complete. The survey is hosted securely on the University of Montreal website, using LimeSurvey.
If you would like to know more about the study, please contact Atul Jaiswal at firstname.lastname@example.org. Dr. Atul Jaiswal is a recipient of the Health System Impact Postdoctoral fellowship that is jointly funded by the Canadian Institutes of Health Research, the Fonds de recherche du Québec - Santé (FRQS), and the Institut Nazareth et Louis-Braille du CISSS de la Montérégie Centre (INLB).
Posted Tuesday, June 20, 2021
Do Canadians living with epilepsy use marijuana, and what do they think about it now that it is legal?
What is this survey for?
Marijuana (also known as cannabis) use in patients with epilepsy has become an increasing topic of discussion since the Canadian legalization of marijuana in 2018. However, there are still unanswered questions about how many people with epilepsy use cannabis, their cannabis preferences, their beliefs surrounding cannabis use, and if there is stigma for people with epilepsy who use medical marijuana. This survey explores these questions to get a better idea of how cannabis is being used by Canadians with epilepsy and what they think about using cannabis.
Who should take part in this survey?
- Adults living with epilepsy (and their parent or caregiver, if help is needed to fill out the survey on their behalf) or parents of a child/children with epilepsy ages 4-18
- It is not a requirement to have ever used marijuana of any kind
Additional details and contact information is available on the Introductory page for this survey.
Posted Tuesday, June 15, 2021
The care of Women with Epilepsy (WWE) is complex and especially important during their childbearing years. There is felt to be a heterogeneity in practice across Canada in how neurologists, epilepsy specialists or nurse practitioners approach this patient population.
The Canadian League Against Epilepsy’s WWE committee would like to ask you to fill out this short <5 min questionnaire to get your insight.
Your answers will help shape our understanding of how care is provided to WWE in Canada.
Please click on the link below for the consent (FR and EN available) and within, the link to the questionnaire.
Thank you on behalf of the CLAE
Esther Bui and Tad Fantaneanu
Posted Wednesday, May 6, 2021
Canadian Paediatric Surveillance Program (CPSP) Study on Serious Adverse events related to cannabis used for medical purposes
As with all medications, serious adverse events related to medical cannabis use can occur. Despite its increasing use, there is little real-world data on adverse events in Canadian children using cannabis products for medical/therapeutic purposes. Information on the risks of health products containing cannabis and cannabinoids, including dose-related risks and drug-cannabis interactions, is critical to ensure that these products can be dispensed without undue harm.
A CPSP study is currently underway to capture information on severe adverse events related to medical cannabis use in children and youth. As a paediatric neurologist who may encounter patients using cannabis products for a variety of medical reasons, we need your help to report all eligible cases to the Canadian Paediatric Surveillance Program CPSP.
Please see all details and survey link: https://www.cpsp.cps.ca/surveillance/study-etude/serious-adverse-events-related-to-cannabis-used-for-medical-purposes
If you are not a member of the CPSP, and would like to participate in this prospective surveillance study, please contact the CPSP office. The CPSP team would be happy to register you for the duration of this important project. Please contact: CPSP@cps.ca to enroll, or to learn more.
Posted Wednesday, May 5, 2021
Healthcare providers across Canada are requested to answer this short 5 minute survey related to their care of TSC patients. The aim of this quality improvement survey is to learn more about pediatric TSC models of care delivery in Canada, as well as to identify gaps in care.
The hope is to establish an innovative multidisciplinary network in pediatric TSC care to enhance collaborative educational and research activity across Canada.
Participation in this survey is voluntary and anonymous. None of the responses will be connected to identifying information.
Survey Link: https://forms.gle/qyuYQJZfq6VyKa3JA
If you have any questions or difficulty with this survey please contact Denait Haile at OntarioTsc@gmail.com
Sincerely, Maryam Nouri, MD, MSc, FRCPC, CSCN (EEG), Robyn Whitney, MD, FRCPC, CSCN (EEG), Maria Zak, NP
Posted Wednesday, May 5, 2021